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Texas Time Warp? State Criticized for Mental Care

by:   |  The Associated Press

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The federal government has concluded that the Texas state care system is stubbornly out of step with modern mental health practices. (Photo: David Rosner)

    Denton, Texas - For more than a century, thousands of mentally disabled Americans were isolated from society, sometimes for life, by being confined to huge state institutions.

    In at least one place, they still are.

    Texas has more mentally disabled patients in institutions than any other state, and the federal government has concluded that the state's care system is stubbornly out of step with modern mental health practices.

    Critics allege that Texas remains stuck in an era when the mentally disabled were hidden away in large, impersonal facilities far from relatives and communities.

    "In Texas, it's like a time warp," said Jeff Garrison-Tate, an advocate who wants to close the 13 facilities called "state schools" and move patients into group homes.

    For the third time in three years, the criticism has attracted the attention of the Justice Department, which on Tuesday accused Texas of violating residents' constitutional rights to proper care.

    Investigators found that dozens of patients died in the last year from preventable conditions, and officials declared that the number of injuries was "disturbingly high."

    In addition, hundreds of documents reviewed by The Associated Press show that some patients have been neglected, beaten, sexually abused or even killed by caretakers. Inspection reports also describe filthy rooms and unsanitary kitchens.

    Many of the nation's mentally ill or disabled in the 1800s were housed together in institutions, sometimes called insane asylums. But by the 1960s, most experts concluded that mentally disabled patients fared better in smaller, community-based settings.

    The American Institution on Intellectual and Developmental Disabilities says large care facilities - usually those with at least 16 residents - "enforce an unnatural, isolated, and regimented lifestyle that is not appropriate or necessary."

    Because of those concerns, eight states have abolished large institutions for the mentally disabled. Another 13 states closed most of their largest facilities, leaving just one open in each state.

    But Texas has remained "the institution capital of America," said Charlie Lakin, director of the Research and Training Center on Community Living at the University of Minnesota.

    The 13 facilities in Texas house nearly 5,000 residents - more than six times the national average.

    On a per-capita basis, Texas has 20.4 people per 100,000 in large institutions, Lakin said. The national average is 12.2 people.

    Other states with large populations such as New York and California - which have rates of 11.2 and 7.5 people, respectively - rely far less on large institutions.

    Federal law requires the mentally disabled to be treated in "the most integrated setting" possible - a factor that led to the Justice Department rebuke of Texas.

    Laura Albrecht, a spokeswoman for the Texas Department of Aging and Disability Services, said the agency is expanding community-based services. Texas officials say keeping the facilities open is a matter of preserving as many treatment options as possible.

    But critics allege that "warehousing" patients in large institutions invites abuse. Patients are isolated from their families and communities, making regular contact with loved ones more difficult. And caretakers often get overwhelmed by the large numbers of patients, Garrison-Tate said.

    In Texas, officials verified 465 incidents of abuse or neglect against mentally disabled people in state care in fiscal year 2007. Over a three-month period this summer, the state opened at least 500 new cases with similar allegations, according to federal investigators.

    An AP investigation earlier this year revealed that more than 800 state employees have been fired or suspended since the summer of 2003 because they abused, neglected or exploited mentally disabled residents.

    And in the one-year period ending in September, as many as 53 deaths in the facilities were due to potentially avoidable conditions such as pneumonia, bowel obstructions or sepsis, the Justice Department said.

    Some families tell horror stories of their loved ones in the state facilities. For instance, Michelle Dooley said her son spent three months in the Austin State School, which she described as a place of "dingy yellow floors and patients running around without any clothes on."

    During his time there, he refused to leave his bed and often languished in his own excrement, she said.

    Dooley eventually moved her son into a group home in Denton where treatment costs average about $50,000 per year - roughly half as much as the costs at state schools, Garrison-Tate said. Medicaid often picks up most of those costs.

    "It was just horrible," Dooley said. "If he goes back to a state facility, he will shut down and die."

    At the San Angelo State School, inspection reports from 2007 took note of scuffed walls pocked with holes, rotting food, dirty kitchens, broken furniture and missing shower curtains.

    More seriously, two employees were fired after throwing a resident into a pool while he was wearing a restraint jacket. The employees had made a bet with the resident that he would be unable to dunk another resident under water. When he lost the bet, the employees restrained him and threw him in the water, according to the reports.

    Other families say they are happy with the state care.

    Neil Davidson said his daughter Susan, who has cerebral palsy and is mentally retarded, has flourished during her 10 years at the Lubbock State School.

    "I'm very impressed with the level of care she has received," Davidson said. "As far as I am concerned, it's Mr. Rogers' neighborhood. Everybody is looking out for everybody else."

    A visit to the Denton State School, the largest in Texas, reveals a sprawling campus spread across well-kept lawns. Superintendent Randy Spence described the place as a "happy, homelike atmosphere."

    "The vast majority of our employees love the people they work with," said Cecilia Fedorov, another spokeswoman for the Department of Aging and Disability Services. "They think of them as extended family."

    But Denton is also the site of Texas' most notorious case of state school abuse.

    In 2002, a care worker repeatedly kicked and punched a resident in the stomach and groin. Haseeb Chishty nearly died after that beating. He is now confined to a wheelchair and unable to feed himself or use the bathroom.

    "It got to the point where it was fun beating him, torturing him," said former care worker Kevin Miller, who is now serving 15 years for aggravated assault.

    In a statement videotaped by Chishty's lawyer, Miller said he and many of his fellow care workers used methamphetamines, cocaine and Oxycontin on the job.

    Chishty's mother filed a lawsuit against the facility, but it went nowhere. In Texas, government entities are all but immune from lawsuits.

    Some critics want to close the state schools. But because the Texas Legislature created each one, only lawmakers can close them.

    Many of the institutions are large employers in small towns, and they often pay more than other jobs in rural areas. Lawmakers fear taking action that would lead to layoffs, Garrison-Tate said.

    "Even if we said we wanted to close all state schools, the community resources aren't there at this time," said state Rep. Larry Phillips, chairman of a legislative committee studying the facilities.

    Kelly Reddell, the lawyer whose client's son was beaten nearly to death, said the state is not doing right by its mentally disabled.

    "The very nature of the institutional setting, I think, creates the environment for the abuse to take place," she said. "How in the world can you think this system is the best and it makes sense?"

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Comments

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Name me a state that is

Name me a state that is doing it RIGHT. In North Carolina we took people out of institutions and put them....on the street. Schizophrenia is now the new homelessness. What kind of a nation are we, anyway, what kind of people, that we would be so callous and unfeeling as to treat our most vulnerable people with such disrespect? We toss people out of ugly institutions such as mental hospitals and transfer them to ugly institutions we call ... jails. We provide the merest pittance for mental health care, all the while claiming that we do this in the name of "choice" and "community-based healthcare" for the people we continue to victimize. We are players of cruel jokes, projecting our own sickness onto the sickness of those whom we designate as "carriers" of mental illness. It makes me wonder who are the real sociopaths.

Trieste, Italy, is the best

Trieste, Italy, is the best model of care I have found. It is much visited and reported on. When people were transferred from a hospital to apartments by themselves, it was quickly noticed that they were not thriving in isolation. So the chief psychiatrist made small-cap loans to lineworkers and clients to start small businesses. The old hospital got turned into a business incubator. Existing businesses were afraid to hire clients, but the lineworkers who knew them knew their strengths. There are times when being able to stay awake 36 hours in a row has advantage. The businesses operate as social coops. Every person has an equal vote no matter what their function, and after costs are paid, what to do with retained earnings is voted on. The businesses have to fill a need and find a market. If they don't, they go out. I haven't tried it today, but Googling Trieste mental health has always turned up interesting reading. The wish to work, to be productive in community, is quite universal. The challenge is to design and pay for appropriate work that can enrich the earth and provide for a good diversity of flora and fauna and for a clean and safe environment.

Stephen, you said it

Stephen, you said it perfectly. A classic example of "Right to life" being a misnomer and should be "Right to birth". Once the birth takes place the child is on their own.The situation nation wide is abysmal.Texas officials should be collectively ashamed.

Over a thousand years ago

Over a thousand years ago the treatment for mental illness in Persia was music, gardens, water sounds- while Mary of Bethlehem Convent aka Bedlam, beat the crazies, sometimes to drive out demons, sometimes for the enjoyment of upper class onlookers. The West has a hole in its head. My imaginary friend thinks it needs therapy. I went to one of the two best hospitals for multiple personality disorder in the country. I had to pay an attorney to sue my insurance company to get the benefits I paid the company for. In that private hospital I heard horror stories from patients who had spent time in state run nut houses. The staff seem to have been hired for their sadism. I had a world renown psychiatrist in addition to those two month for two years in a very high quality facility. Money. I had the insurance. People without money live on the street between state hospital rounds. No sane person could comprehend the difficulty of wading through molasses, putting one foot in front of the other, that is mental illness. Being crazy takes an enormous amount of energy to simply survive.

You can give 'Saint' Ronald

You can give 'Saint' Ronald Reagan the credit for closing the institutions in California. The promise was made that 'community mental health centers' would pick up the slack, but they were never funded appropriately, and soon only served the 'high functioning' population. In Los Angeles we soon saw all these people living out of shopping carts, next door to the mental health facility in some cases.

Obviously Texas needs to put

Obviously Texas needs to put MORE people in mental institutions, considering who they keep voting for. Or maybe all those people are locked up for being liberals? It's no coincidence that the religio-whacko fundie fanatics surged in power after Ronnie "My hair is still naturally brown at age 70" Ray-gun closed down government asylums "to save money." Result: those who couldn't take care of themselves either ended up on the streets, or in jail, and those who could get hold of money joined the 700 Club. People in those "lock ups" are no worse off than the ones living under bridges in Florida, or spending all winter riding the El up north. Until real treatment is found for mental disorders, "horror stories" like this are nothing we don't see ourselves, personally, every day, everywhere.